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Spina Bifida Association of Western Pennsylvania

Chelsi Figley has her sights set on the 2016 Paralympic Games.
See the article by clicking on the picture.

Breathing hasn't always come easy, but dancing did. 
Read Elizabeth's 
story by clicking on the picture.

to Dan McCoy for bringing
home the GOLD!!!
See the article by clicking the picture.

to SBAWP Community Services
Resident on publishing her
first novel!
Read the article by clicking the picture! 


Speak OUT about Spina Bifida

Please click the picture to read an article about one of our amazing campers!


Our Mission
The Spina Bifida Association of Western Pennsylvania is committed to improving the quality of life for people with spina bifida and their families by providing a continuum of support services, education and advocacy.
Learn More About Us




National Rehab has launched a Partners in Care program.  It is available to all individuals with spina bifida.  It's a personalized service and you won't be disappointed. 


Check our their April Newsletter by clicking here. 


Having Trouble Putting
Food On Your Table?

Many people are
now eligible for
SNAP/food stamp
benefits because of
guideline changes!

Call to see if you
are eligible today!

(412) 431-8963
Celebrating 45 Years  of Service

The Spina Bifida Association of Western PA (SBAWP) is celebrating 45 years of service and support to individuals with spina bifida and their families. What started as a parent support group has now become nationally recognized organization with services that span a lifetime.

Learn more about SBAWP and its programs and services in the pages of our web site and stop back often to keep updated on what is happening within the Association!

Highmark Walk for a Healthy Community - 2014

Registration is Open.

Just one more reason to look forward to Spring - SBAWP will again be participating in the Highmark Walk for a Healthy Community on May 17, 2014 at Stage AE.  Underwritten by Highmark Blue Cross Blue Shield, 100% of the proceeds raised by SBAWP will benefit SBAWP programs that benefit people with disabilities.

So dust off those walking shoes, and get ready to walk or roll for SBAWP - to register or make a donation to SBAWP through the Walk - http://hcf.convio.net/sbawp

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2014 SBAWP Annual Summer Festival

presented by Seubert and Associates

           Presented by Seubert and Associates

Mark the Date!  Saturday, August 16, 2014
Maple Grove Pavilion, Blueberry Hill Park, Franklin Park

Fun in the sun for everyone - activities for all ages, kid's activities, sports, games, contests, a basket auction, and great live performances by Midlife Crisis, Southern Comfort, and the Theradancers (performers may change).

Registration not required, but welcome (click "Read more" below). For more information, call 724-934-9600

Thanks to our 2014 Corporate Sponsors (as of March 5, 2014): 

Cipriani and Werner * Creative Force Video Productions, Inc. * Finn Chiropractic * Tudi Mechanical Solutions * Quest Energy Solutions


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Stream Energy Power Up! Program

Support SBAWP just by paying your energy bill each month by enrolling in Stream Energy's unique Power Up! Program, which pays us monthly commissions if you enroll for your electricity or natural services through SBAWP.  Just go to http://spinabifida.streampowerup.biz for more information or to enroll.

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Day of Giving

What day will May 6, 2014 be for you? 
Will it be a day of giving everyone a chance to glow? 

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Spina Bifida Support Group


Join us once a month for a support group for families and caregivers.  Sponsored by National Rehab and the SBAWP.   You can find more details at the support
group facebook page                                          or by emailing support@sbawp.org


Childcare is provided and the kids have a GREAT time!

Childcare is provided, however, we ask that you please call the the SB office at 724-934-9600 to request childcare. If you do not, we may not have enough volunteers available.

Read More
Quality of Life in Spina Bifida Survey
Quality of life in children with Spina Bifida.

Konrad M. Szymanski, MD MPH, Rosalia Misseri, MD, Benjamin Whittam, MD, Shelly King, RN CPNP, Katherine C. Hubert, MD MPH, Martin Kaefer, MD, Richard C. Rink, MD, Mark P. Cain, MD
Division of Pediatric Urology, Riley Hospital for Children at IU Health, Indianapolis, IN



The Division of Pediatric Urology at Riley Hospital for Children is currently developing a questionnaire for children, teens, and adults with Spina Bifida to allow us to measure the quality of life of our patients.  This questionnaire will help us understand if patients are doing better in certain areas of their life, or struggling in others.  We want to improve the quality of life of our patients.  If you (or your child) had Spina Bifida surgery on your spine as a newborn, you can help!


We are looking for children 8 years old or older, teens and adults with Spina Bifida.  Ultimately, we hope this will help others with Spina Bifida. Helping with this important project would require people with Spina Bifida and their parents or caregivers to complete a 20-minute online questionnaire on a secure website.  We do not keep patient information and all information is anonymous.  We will ask for a few general medical details, as well as questions about how the child, teen or adult with Spina Bifida feels.
If you are interested in participating in our project, please go to: www.surveymonkey.com/s/QSB to fill out the questionnaire.
We thank you for your help!
Read More
Firefly Retreats

Click your session to register! 

 February Adult- Feb. 7-9, 2014
March Adult- March 7-8, 2014
March Youth/Teen- March  21-23, 2014
April Adult-April 11-13, 2014
May Youth/Teen  - May 9-11, 2014


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Thank You!

to everyone who made the Afternoon JamFest at Jergel's such a great success!

to the Ken Mawr United Presbyterian Church

for hosting a Pancake Breakfast on November 10, 2013 to benefit SBAWP programs and services

to the Bradford Woods Community Church

for hosting a Pancake Breakfast on October 5, 2013 to benefit SBAWP programs and services

and to The Blue Thong Society

and local chapter president Nancy Weaver, for the wonderful Luau with dinner, drinks, and great entertainment by the Businessmen, all to benefit children's programming at SBAWP!

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Firefly Tumblers

For Firefly Supporters of All Ages!

24 oz double walled tumbler with screw on lid and straw 

Only $8

 Pick one up at the SB office or at the next retreat!

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Hey, there's an app for that
Research study

  Hey, there's an app for that!

Are you interested in participating in a research study for enhanced wellness?  Click here for more info!

Must have spina bifida and be between the ages of 18-40. 

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SBAWP Resource Library

    SBAWP Resource Library

Looking for a good book?  Need more information about spina bifida, or information about services available to individuals with disabilities?  Check out SBAWP's online Resource Library  http://astore.amazon.com/wwwsbawporg-20 . 

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