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Spina Bifida Association of Western Pennsylvania

Spring 2015 "Kaleidoscope"

McKesson Patient Care Solutions raises their hands high to support the SBAWP's Grow and Glow Gang in the Highmark Walk!

 WOCN Sue Wood organized "Jeans Days" and a "Candy Bar" to help raise funds that will help send kids to camp!  They raised $1319

All participant's received a Spina Bifida Awareness bracelet to show their support! 

Thank you to Sue and  and all of the WONDERFUL staff at McKesson Patient Care Solutionsfor helping to support SBAWP at the Highmark Walk!  We enjoyed walking with you on Saturday at the Walk! 

Bringing Home Gold- Dan Mcoy Achieves His Dream In Sochi
Read about his journey by clicking the picture

Congressman Rothfus visits SBAWP participants
Read about the visit by clicking the picture

 

2014 Top-rated nonprofits and charities
Volunteer. Donate. Review.

SBAWP HONORED AS 2014 TOP-RATED NONPROFIT
GreatNonprofits.org Award is based on Positive Online Reviews

The Top-Rated Nonprofit award was based on the large number of positive reviews that SBAWP received – reviews written by volunteers, donors and clients. People posted their personal experience with the us.

While the Top-Rated Awards run through the end of October, SBAWP was part of the inaugural group to qualify for the year. In addition, we’ll been added to GreatNonprofits #GivingTuesday Guide—an interactive guide to top nonprofits throughout the years. Look for this near the holidays.

Chelsi Figley has her sights set on the 2016 Paralympic Games.
See the article by clicking on the picture.

Breathing hasn't always come easy, but dancing did. 
Read Elizabeth's 
inspirational
story by clicking on the picture.

CONGRATULATIONS
to Dan McCoy for bringing
home the GOLD!!!
See the article by clicking the picture.



CONGRATULATIONS
to SBAWP Community Services
Resident on publishing her
first novel!
Read the article by clicking the picture! 


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Speak OUT about Spina Bifida

Please click the picture to read an article about one of our amazing campers!

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Our Mission
The Spina Bifida Association of Western Pennsylvania is committed to improving the quality of life for people with spina bifida and their families by providing a continuum of support services, education and advocacy.
Learn More About Us

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National Rehab has launched a Partners in Care program.  It is available to all individuals with spina bifida.  It's a personalized service and you won't be disappointed. 

 

Check our their April Newsletter by clicking here. 

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Having Trouble Putting
Food On Your Table?

Many people are
now eligible for
SNAP/food stamp
benefits because of
guideline changes!

Call to see if you
are eligible today!

(412) 431-8963
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Celebrating 45 Years  of Service

The Spina Bifida Association of Western PA (SBAWP) is celebrating 45 years of service and support to individuals with spina bifida and their families. What started as a parent support group has now become nationally recognized organization with services that span a lifetime.

Learn more about SBAWP and its programs and services in the pages of our web site and stop back often to keep updated on what is happening within the Association!

2015 SBAWP Annual Summer Festival

presented by Seubert and Associates

           Presented by Seubert and Associates

  Saturday, August 15, 2015
1 p.m.-8 p.m.
Maple Grove Pavilion, Blueberry Hill Park, Franklin Park

GREAT SPONSORSHIP PACKAGES AVAILABLE! Call the office for more information. 


Fun in the sun for everyone - activities for all ages, kid's activities, sports, games, contests, a basket auction, and great live performances by:
Man and The Arena and Kid Icarus!

Registration not required, but welcome (click "Read more" below). For more information, call 724-934-9600

Thanks to our 2015 Corporate Sponsors (as of 5/21/2015): 

 Creative Force Video Productions, Inc. * Fifth Third Bank* Fort Pitt Capital Group*  Heyl & Patterson, Inc.* Kozik Bros., Inc.* McKesson Patient Care Solutions * PGT Trucking* Vector Security 

Read More

Join Our Team

Read More

Summer Festival Takes Flight

Fun in the sun was had by all who attended!  We had great basket prizes and  amazing live performances by Midlife Crisis, Southern Comfort,  COL Jazz, COL Krunk, Kid Icarus, School of Rock, and the Theradancers

 WE HOPE TO SEE YOU ALL NEXT YEAR!!

 THANK YOU to our 2014 Corporate Sponsors!  We couldn't have done it without you!!

LEAD SPONSORS: PGT Trucking, Leisure Lawn Services, Nathan Contracting

Federated Investors * Fort Pitt Capital * Fifth Third Bank * Cipriani and Werner * Coloplast * Creative Force Video Productions, Inc. * Finn Chiropractic * Harkel * McKesson Patient Care Solutions-National Rehab * Tudi Mechanical Solutions * Quest Energy Solutions * UTZ * Stick With It Fitness * Scott Advertising Specialist * Nex-Tier Bank * Saul Ewing LLP * American Back Center * Kozik Bros, Inc. * Turo Family Chiropractic * Vector Security * eKidz Care * NuMotion * First Choice Mortgage Services *

Read More

Stream Energy Power Up! Program

   
Support SBAWP just by paying your energy bill each month by enrolling in Stream Energy's unique Power Up! Program, which pays us monthly commissions if you enroll for your electricity or natural services through SBAWP.  Just go to http://spinabifida.streampowerup.biz for more information or to enroll.

Read More
SBAWP Wellness Conference

Wellness Conference

The Spina Bifida Association of Western PA (SBAWP) is pleased to invite you to join us for our first SBAWP Wellness Conference on August 29, 2015 at PNC Park. 

Cost:  FREE 

SPACE IS EXTREMELY LIMITED

Read More
OT students at SBAWP

OT Students at SBAWP
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THANK YOU!

 

  THANK YOU!

To our Bands (Government Cheese and Man And the Arena), Sponsors, Donors, Board members, Staff, Families, and Supporters! 

We had a successful event on Saturday, March 7th at Jergels and we could not have done it without you!!  We truly appreciate your support and we hope you all had as good of a time as we did!  WE CANT WAIT UNTIL NEXT YEAR!!

 

 

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Spina Bifida Support Group

 

Join us Tuesday, April 14th, for a support group for families and caregivers.  Sponsored by National Rehab and the SBAWP.   You can find more details at the support group facebook page or by emailing support@sbawp.org

        

Childcare is provided and the kids have a GREAT time!

Childcare is provided, however, we ask that you please call the the SB office at 724-934-9600 to request childcare. If you do not, we may not have enough volunteers available.

Read More
Quality of Life in Spina Bifida Survey
Quality of life in children with Spina Bifida.

Konrad M. Szymanski, MD MPH, Rosalia Misseri, MD, Benjamin Whittam, MD, Shelly King, RN CPNP, Katherine C. Hubert, MD MPH, Martin Kaefer, MD, Richard C. Rink, MD, Mark P. Cain, MD
Division of Pediatric Urology, Riley Hospital for Children at IU Health, Indianapolis, IN

 

 

The Division of Pediatric Urology at Riley Hospital for Children is currently developing a questionnaire for children, teens, and adults with Spina Bifida to allow us to measure the quality of life of our patients.  This questionnaire will help us understand if patients are doing better in certain areas of their life, or struggling in others.  We want to improve the quality of life of our patients.  If you (or your child) had Spina Bifida surgery on your spine as a newborn, you can help!

 

We are looking for children 8 years old or older, teens and adults with Spina Bifida.  Ultimately, we hope this will help others with Spina Bifida. Helping with this important project would require people with Spina Bifida and their parents or caregivers to complete a 20-minute online questionnaire on a secure website.  We do not keep patient information and all information is anonymous.  We will ask for a few general medical details, as well as questions about how the child, teen or adult with Spina Bifida feels.
 
If you are interested in participating in our project, please go to: www.surveymonkey.com/s/QSB to fill out the questionnaire.
 
We thank you for your help!
Read More
THANK YOU!!

Thank You!

to everyone who made the Afternoon JamFest at Jergel's such a great success!

to the Ken Mawr United Presbyterian Church

for hosting a Pancake Breakfast on November 10, 2013 to benefit SBAWP programs and services

to the Bradford Woods Community Church

for hosting a Pancake Breakfast on October 5, 2013 to benefit SBAWP programs and services

and to The Blue Thong Society

and local chapter president Nancy Weaver, for the wonderful Luau with dinner, drinks, and great entertainment by the Businessmen, all to benefit children's programming at SBAWP!

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Firefly Tumblers

For Firefly Supporters of All Ages!

24 oz double walled tumbler with screw on lid and straw 

Only $8

 Pick one up at the SB office or at the next retreat!

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Hey, there's an app for that
Research study

  Hey, there's an app for that!

Are you interested in participating in a research study for enhanced wellness?  Click here for more info!

Must have spina bifida and be between the ages of 18-40. 

Read More
SBAWP Resource Library

    SBAWP Resource Library

Looking for a good book?  Need more information about spina bifida, or information about services available to individuals with disabilities?  Check out SBAWP's online Resource Library  http://astore.amazon.com/wwwsbawporg-20 . 

Read More