Privacy and Security

We have taken every effort to design our Web sites to be useful, informative, helpful, honest and fun. Hopefully we’ve accomplished that – and would ask that you let us know if you’d like to see improvements or changes that would make it even easier for you to find the information you need and want. All we ask is that you agree to abide by the following Terms and Conditions.

Take a few minutes to look them over because by using our site you automatically agree to them. Naturally, if you don’t agree, please do not use the site. We reserve the right to make any modifications that we deem necessary at any time. Please continue to check these terms to see what those changes may be! Your continued use of the Spina Bifida Association of Western Pennsylvania Web site means that you accept those changes.

Limitation of Liability

SPINA BIFIDA ASSOCIATION OF WESTERN PENNSYLVANIA WILL NOT BE LIABLE FOR ANY DAMAGES OR INJURY THAT ACCOMPANY OR RESULT FROM YOUR USE OF ANY OF ITS SITES.THESE INCLUDE (BUT ARE NOT LIMITED TO) DAMAGES OR INJURY CAUSED BY ANY:

• USE OF (OR INABILITY TO USE) THE SITES
• USE OF (OR INABILITY TO USE) ANY SITE TO WHICH YOU HYPERLINK FROM OUR SITES
• FAILURE OF OUR SITES TO PERFORM IN THE MANNER YOU EXPECTED OR DESIRED
• ERROR ON OUR SITES
• OMISSION ON OUR SITES
• INTERRUPTION OF AVAILABILITY OF OUR SITES
• DEFECT ON OUR SITES
• DELAY IN OPERATION OR TRANSMISSION OF OUR SITES
• COMPUTER VIRUS OR LINE FAILURE
• PLEASE NOTE THAT WE ARE NOT LIABLE FOR ANY DAMAGES, INCLUDING:
  • DAMAGES INTENDED TO COMPENSATE SOMEONE DIRECTLY FOR A LOSS OR INJURY
  • DAMAGES REASONABLY EXPECTED TO RESULT FROM A LOSS OR INJURY (KNOWN IN LEGAL TERMS AS “CONSEQUENTIAL DAMAGES.”)
  • OTHER MISCELLANEOUS DAMAGES AND EXPENSES RESULTING DIRECTLY FROM A LOSS OR INJURY (KNOWN IN LEGAL TERMS AS “INCIDENTIAL DAMAGES.”)

WE ARE NOT LIABLE EVEN IF WE’VE BEEN NEGLIGENT OR IF OUR AUTHORIZED REPRESENTATIVE HAS BEEN ADVISED OF THE POSSIBILITY OF SUCH DAMAGES OR BOTH.

EXCEPTION: CERTAIN STATE LAWS MAY NOT ALLOW US TO LIMIT OR EXCLUDE LIABILITY FOR THESE “INCIDENTAL” OR “CONSEQUENTIAL” DAMAGES. IF YOU LIVE IN ONE OF THOSE STATES, THE ABOVE LIMITATION OBVIOUSLY WOULD NOT APPLY WHICH WOULD MEAN THAT YOU MIGHT HAVE THE RIGHT TO RECOVER THESE TYPES OF DAMAGES.

HOWEVER, IN ANY EVENT, OUR LIABILITY TO YOU FOR ALL LOSSES, DAMAGES, INJURIES, AND CLAIMS OF ANY AND EVERY KIND (WHETHER THE DAMAGES ARE CLAIMED UNDER THE TERMS OF A CONTRACT, OR CLAIMED TO BE CAUSED BY NEGLIGENCE OR OTHER WRONGFUL CONDUCT, OR THEY’RE CLAIMED UNDER ANY OTHER LEGAL THEORY) WILL NOT BE GREATER THAN THE AMOUNT YOU PAID TO ACCESS OUR SITES.

Termination of this Agreement

This agreement is effective until terminated by either party. You may terminate this agreement at any time, by destroying all materials obtained from all Spina Bifida Association of Western Pennsylvania Web sites, along with all related documentation and all copies and installations. Spina Bifida Association of Western Pennsylvania may terminate this agreement at any time and without notice to you, if, in its sole judgment, you breach any term or condition of this agreement. Upon termination, you must destroy all materials. In addition, by providing material on our Web sites, we do not in any way promise that the materials will remain available to you. And Spina Bifida Association of Western Pennsylvania is entitled to terminate all or any part of any of its Web sites without notice to you.

Jurisdiction and Other Points to Consider

Unless otherwise specified, the Online Materials on our sites are presented to provide information about the resources of Spina Bifida Association of Western Pennsylvania. The Spina Bifida Association of Western Pennsylvania was organized under the laws of the Commonwealth of Pennsylvania, in the United States of America. If you use our sites from locations outside of the United States, you are responsible for compliance with any applicable local laws.

These Terms of Use, and the agreement they create, shall be governed by and interpreted according to the laws of the Commonwealth of Pennsylvania (without applying the state’s conflict-of-law principles). If any provision of this agreement is unlawful, void or unenforceable, it will not affect the validity and enforceability of any remaining provisions. Spina Bifida Association of Western Pennsylvania may modify these Terms of Use, and the agreement they create, at any time, simply by updating this posting and without notice to you. This is the ENTIRE agreement regarding all the matters that have been discussed.

Health Information

Information accessible on this site is not intended to substitute for professional medical advice and information. Information provided is general in nature and may be helpful to some people but not others, depending upon their personal medical needs. This is why you should always consult with your personal physician prior to changing or undertaking a new diet, exercise program or following advice designed for general audiences only. Your physician is typically best able to evaluate whether or not a specific health suggestion or potential course of treatment is best for you. Never disregard professional medical advice or delay to seek it because of something you may have read on this site.

Refund Policy

Contributions given to SBAWP through this site are non-refundable.

Purchases made through this site can be returned for a full refund of the purchase price (excluding shipping and handling charges). To return items purchased through this website the purchaser must contact us for a return authorization number before returning the product.

Privacy and Security

Greetings from the Spina Bifida Association of Western Pennsylvania (SBAWP) and welcome to our site! We extend the following information to assure you, our guest, that we are concerned about and respect your privacy while visiting our Web site. The Spina Bifida Association of Western Pennsylvania will never sell, lease or rent your confidential information. We will always endeavor to take steps to assure that any information you provide to us will remain secure. We want you to feel safe in your online experience while visiting our site. We therefore request that you take a moment to review the following valuable information.

Security

Our Web site’s ecommerce system uses SSL encryption to protect sensitive data transmissions from your computer to our Web site. You are able to see when the SSL encryption is active either by the “padlock” icon at the bottom of your browser’s window or by a blue line around the window. In certain areas, password protection is used to protect your privacy and security.

Changes

SBAWP reserves the right to make changes to this privacy policy at any time and requests that you review this policy for updates.

Questions or Suggestions

Please direct all questions or comments regarding this privacy policy to SBAWP at (800) 243-5787 or write us at Spina Bifida Association of Western Pennsylvania, 3000 Stonewood Drive, Suite 100, Wexford, PA 15090. This Web site may provide links to external Web sites maintained by individuals or organizations external to Spina Bifida Association of Western Pennsylvania. Once you access information that links you to another Web site, you are subject to the privacy policy of the Web site containing the information you have linked to.

Resources and Fees

Any and all resources, registration fees, or donations are stated in U.S. Dollars. Registration fees will be refunded in accordance with SBAWP refund policy as provided on the registration form. Any and all resources returned to SBAWP will be refunded in accordance with the SBAWP refund policy as provided at time of purchase.

Restrictions of Use of Online Materials

All materials contained in the Spina Bifida Association of Western Pennsylvania Web site (“Online Material”) are the copyrighted property of Spina Bifida Association of Western Pennsylvania. All trademarks, service marks, and trade names are proprietary to Spina Bifida Association of Western Pennsylvania. No Online Material from our Web sites may be copied, reproduced, republished, uploaded, posted, transmitted, or distributed in any way, except that you may download one copy of the materials on any single computer for your personal, noncommercial home use only, provided that you 1) retain all copyright, trademark and propriety notices, 2) you make no modifications to the materials, 3) you do not use the materials in a manner that suggests an association with any of our products, services, events or brands, and 4) you do not download quantities of materials to a database, server, or personal computer for reuse for commercial purposes. You may not, however, copy, reproduce, republish, upload, post, transmit or distribute our Online Material in any way or for any other purpose unless you get our written permission first. Neither may you add, delete, distort or misrepresent any content on the Spina Bifida Association of Western Pennsylvania sites. Any attempts to modify any Online Material, or to defeat or circumvent our security features is prohibited.

Everything you download, any software, plus all files, all images incorporated in or generated by the software, and all data accompanying it, is considered licensed to you by Spina Bifida Association of Western Pennsylvania or third-party licensors for your personal, non-commercial home use only. We do not transfer title of the software to you. That means that we retain full and complete title to the software and to all of the associated intellectual-property rights. You’re not allowed to redistribute or sell the material or to reverse-engineer, disassemble or otherwise convert it to any other form that people can use.

Submitting Your Online Material to Us

All remarks, suggestions, ideas, graphics, comments, or other information that you send to Spina Bifida Association of Western Pennsylvania through our site (other than information we promise to protect under our Privacy Policy), becomes and remains our property, even if this agreement is later terminated.

That means that we don’t have to treat any such submission as confidential. You can’t sue us for using ideas you submit. If we use them, or anything like them, we don’t have to pay you or anyone else for them. We will have the exclusive ownership of all present and future rights to submissions of any kind. We can use them for any purpose we deem appropriate to our Spina Bifida Association of Western Pennsylvania mission, without compensating you or anyone else for them.

You acknowledge that you are responsible for any submission you make. This means that you (and not we) have full responsibility for the message, including its legality, reliability, appropriateness, originality, and copyright.

Collection of Information

The Spina Bifida Association of Western Pennsylvania does not collect personal information without your knowledge during your visit to our Web sites. However, the Spina Bifida Association of Western Pennsylvania does at times ask that you provide us with personal information while online. The type of information we collect typically, but not always, corresponds directly with the service you request. For instance, you can make donations, when requested you can offer your thoughts, opinions, concerns, ideas, personal experiences, questions and/or suggestions to our resources and programs or you can request that a resource be sent to you directly. As a visitor, the personal information you provide may also be used to improve the usability of, and information available on, our site. In other words, at times we will ask you for more information, beyond just your name and contact information, than is needed to facilitate our response to your specific request. Your provision of such additional information is your acknowledgement that you consent to our use of such information to better serve you, our visitor, and others coming to our sites.

The Spina Bifida Association of Western Pennsylvania will not sell, lease or rent its mailing list or release any of your confidential information to any outside organization or individual except as agreed to by you, or as permitted by law or required by law including but not limited to statute, regulation, court order, subpoena, search warrant, in the course of a legal proceeding or in response to a law enforcement agency request; requests from the IRS, state or local taxing authorities; to enforce our Terms of Service, or site rules; or to protect the safety and security of our visitors and our sites.

In the case of donations, a donor’s name may appear in the Association’s publication(s) as recognition unless otherwise requested by the donor. In those instances when a donor’s name appears, neither the amount of the donation nor any personal contact information will be published.

Links to Other Sites

We sometimes provide referrals to and links to other World Wide Web sites from our sites. Such a link should not be seen as an endorsement, approval or agreement with any information or resources offered at sites you can access through our sites. If in doubt, always check the Uniform Resource Locator (URL) address provided in your WWW browser to see if you are still in a Spina Bifida Association of Western Pennsylvania-operated site or have moved to another site. Spina Bifida Association of Western Pennsylvania is not responsible for the content or practices of third party sites that may be linked to our sites. When Spina Bifida Association of Western Pennsylvania provides links or references to other Web sites, no inference or assumption should be made and no representation should be inferred that Spina Bifida Association of Western Pennsylvania is connected with, operates or controls these Web sites. Any approved link must not represent in any way, either explicitly or by implication, that you have received the endorsement, sponsorship or support of any Spina Bifida Association of Western Pennsylvania site or endorsement, sponsorship or support of the Spina Bifida Association of Western Pennsylvania, including its respective employees, agents or directors.

Monitoring of Online Postings

Spina Bifida Association of Western Pennsylvania shall have the right to monitor and review the content of any discussions, chats, forums, postings, transmissions and bulletin boards, although Spina Bifida Association of Western Pennsylvania is not under legal obligation to do so. As a charity organization we uphold specific foundational beliefs. We expect visitors to our sites, and anyone using our communication tools to adhere to a sense of decency and decorum that we deem appropriate. We are the sole authority on questions of appropriateness.

Naturally, Spina Bifida Association of Western Pennsylvania assumes no responsibility or liability arising from the content of an online posting. However, we do specifically prohibit you or any visitor from posting or transmitting any unlawful, threatening, libelous, obscene, scandalous, inflammatory, pornographic, or profane material or any material that could constitute or encourage what could be considered a criminal offense, give rise to civil liability or otherwise violate any law. Spina Bifida Association of Western Pennsylvania will fully cooperate with authorities or court orders requesting details of criminal postings. Spina Bifida Association of Western Pennsylvania shall have the right in its sole discretion to edit, refuse to post or remove any material submitted to or posted on any Spina Bifida Association of Western Pennsylvania web site. Spina Bifida Association of Western Pennsylvania shall have the right to remove any material that it determines to be in violation of these provisions or otherwise objectionable.

In addition, children 12 and under are not authorized to post messages or participate in Forums on any Spina Bifida Association of Western Pennsylvania Web site unless the site has been specifically designed for them and all appropriate parental notification and approval devices have been complied with fully.