The Spina Bifida Association of Western Pennsylvania (SBAWP) is committed to improving the quality of life for people with disabilities, especially those with spina bifida and their families, by providing a continuum of direct service, education and advocacy.


The Spina Bifida Association of Western Pennsylvania (SBAWP) is a nationally recognized, charitable, nonprofit provider of information and direct services to children and adults with spina bifida and their families. 

SBAWP was originally formed in 1969 as a parent support group, and now offers a variety of programs and services including FireFly Camps and Retreats, the Gatehouse Pre-vocational and Life Skills Program, and Adult Community and Support Services. Through its programs and services that span a lifetime, the SBAWP gives individuals the resources, self-confidence, and practical skills to lead full and active lives and become contributing members of the community.

SBAWP’s corporate office is located in Wexford, PA and employs a part-time and full-time staff of trained professionals as well as administrative and support personnel. SBAWP is governed by a board of directors comprised of members of the community, parents of children and adults with spina bifida, and business and medical professionals. Programming and operating costs are funded by individual donations as well as federal, state, corporate and private grants.

SBAWP has served nearly


children, teens and adults living in 28 counties within Western Pennsylvania and portions of New York, Ohio, and West Virginia.


served nearly 



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