Living Beyond Limits - What's Happening Now
34th Annual John L. Moroney III Golf Classic
What started as a rainy day turned out to be another beautiful day for the John L. Moroney III Golf Classic where nearly 100 golfers turned out to raise money to support SBAWP’s FireFly Camps.
Thank you to Boilermakers Local 154, Ironworkers Local 3 and Steamfitters Local 449, who have been golfing together around the Pittsburgh area for 34 years for the Spina Bifida Association of Western Pennsylvania (SBAWP)! In that time, they have raised over $1 million dollars to help send thousands of children and teens with spina bifida and related disabilities to summer camp.
The relationship between the SBAWP and the Boilermakers, Ironworkers and the Steamfitters local unions has been a rich history of members, families and friends who continue to give back to their community and the SBAWP community. Their generosity will continue to pave a path for a strong future and a stronger community.
We look forward to carrying on this tradition for the 35th year on Monday, July 24, 2023 at Hickory Heights Golf Club.
FireFly Camps - Summer 2022
This year’s summer camp went off with out a “hitch”, literally!
Our theme this year was the Wild Wild West where campers enjoyed art, activities, games and dressing up in the spirit of the wild west. We decorated camp with cowboy and cowgirl silhouettes, campfires, cacti, a covered wagon and more. Each camper got their own sheriff badge for their name tag. Crafts involved making dreamcatchers, a watercolor western sunset, clay nature ornaments, cactus cards and small campfires we used as centerpieces for the dance to name a few.
We enjoyed mountain pies by the campfire and, of course, s’mores while we “attempted” to sing camp songs. Campers also made western favorites like wild west pasta, ranch buffalo chicken dip, dirt cake and haystack cookies. We certainly did not go hungry!
Campers got to play cowboys and bandits, enjoy an outdoor movie, and an evening of mustaches and margaritas (virgin of course). They got dressed up in western attire including mustaches and cowboy hats and we took photos of them all in a wanted poster. The best part was when one of the counselors (Niranjan) got dressed up in an inflatable horse costume. We couldn’t stop laughing!
We had a western game night complete with horseshoes, sling shot the cups, herd up the pigs, bottle toss, and barrel ball. Unfortunately, youth and teen night was cut short due to rain but that didn’t dampen our spirits.
Of course, we did all the usual camp activities, ziplining, swimming, bb shooting, archery, axe throwing, tee ball, basketball, and cornhole. We took a boat ride on the river in Ranger Mike’s new boat and took in the sights of Pittsburgh.
Traditions were kept alive with “Super Sloppy” (or the “counselor surprise”), the dance and awards night. Campers shed a tear as they said good-bye to their friends and counselors.
The campers and counselors made many special memories this year. I know I won’t forget all the laughs and smiles that warm my heart. That is what camp is all about! Hopefully, you will join us and find out for yourselves.
For more information on upcoming camps or retreats, visit our website: https://sbawp.org/firefly-camps-retreats/ or contact me, Sue Garver, at 724-934-9600.
We look forward to seeing you soon!
9th Annual Afternoon JamFest
We had another beautiful day for the 9th Annual Afternoon JamFest. It was great to see all of you coming together to celebrate the Spina Bifida Association of Western Pennsylvania and support our programs. Your support helps us create a community for our participants to come together and grow.
Congratulations to Karen Demma for being awarded the 2021 Chairman’s Award. Thank you for all of your hard work helping to bring the John L. Moroney III Golf Classic together!
Jergel’s and their staff were fantastic as always. Thank you for coming in on your “day off” to support SBAWP!
The band was so much fun! Thank you SpinCycle! Visit their website at spincyclepgh.com or look them up on Facebook!
Next year’s date is still to be determined, but we hope to see all of you in 2023! Keep an eye on our website for more information!
5th Annual Shoot for SBAWP
We had another beautiful day in the Laurel Highlands for the 5th Annual Shoot for SBAWP! Thank you to everyone who attended!
Thank you to the following sponsors: Westmoreland Electric Services, Rothman Gordon, PC, Shelly Drilling, The Tripodes Family, The McCormick Family, The Yetsick Family, and Covia!
Thank you, Highlands Sporting Clays, for your hospitality!
We look forward to seeing you next year!
If you have feedback about the event or would like your group photo emailed to you, please contact Robin at email@example.com.
2022 Highmark Walk
On a cold, breezy, rainy morning in May, hundreds of individuals braved the weather and came out to walk and raise money for over 100 nonprofit organizations in the Pittsburgh area.
We are grateful to be involved with the Highmark Walk for the past 12 years and raising over $120,000 for SBAWP during that time. This year proved to be an outstanding year for our organization raising over $27,000.
Thank you to all of the teams and individual walkers who came out to support SBAWP!
Walking for Harper
The Kustra Family
Return of the Macs
For more information regarding the winners of each bracket and the 2022 Sled Hockey National Championship, visit https://www.usahockey.com/news_article/show/1222003
Interested in disabled hockey? Check out the USA Hockey Disabled Hockey page at https://www.usahockey.com/disabledhockey and the Mighty Penguins (local sled hockey program) at http://penguinssledhockey.org/
2022 Toyota | USA Hockey Disabled Hockey Festival
USA Hockey’s disabled hockey program provides opportunities regardless of disability, which were represented at the 2022 Toyota | USA Hockey Disabled Hockey Festival. The Disabled Hockey Festival was held over two weekends in April 2022 at rink around Pittsburgh. The first weekend (April 7-10) featured Blind, Deaf/Hard of Hearing, Special, Standing Amputee & Warrior Hockey and the second weekend (April 21-24) featured Sled Hockey with the 2022 Sled Hockey National Championship taking center stage.
We headed out to watch the second of three Mighty Penguins Adult Gold Team games on Friday, April 22, 2022 at the UPMC Lemieux Center in Cranberry Twp., PA. While the Gold Team was not victorious, everyone on the ice had a great time. Our very own RJ Bird scored the Gold Team goal.
Great job RJ, Marissa, Colin, and Kevin!
The Gatehouse Program provides a structured, safe, and supportive environment for individuals to successfully make the transition to adult life. Young adults live at the Gatehouse while receiving essential life skills and wellness training, as well as vocational and educational assistance.
Our participants are learning the skills necessary to live as independently as possible within our community. The staff and participants … together … come up with ideas on classes they are interested in (or find necessary).
Recently, they had a class on Toilet Repair. This class may sound a bit strange, but it’s definitely important information when you are living on your own. John Blyth, our Facilities Manager, did a great job explaining how toilets work and how to respond to malfunctions. We also covered cleaning, bathroom safety, and sanitation.
Thank you John!
It’s hard to believe the holidays are upon us but we certainly enjoyed the holiday spirit at the December retreats.
Youth and teen started the season right singing carols by the tree. We even made up our own version of the twelve days of Christmas. That was hilarious.
Fine arts miracles told us all stories about different holiday traditions while we all shared a few of our own.
We made tree ornaments and snowman with chalk that we can share with our families. We also made yummy snacks and hot chocolate with candy canes that we enjoyed after our fun gift exchange.
The Adults later shared in the fun by making gnomes and holiday glitter ornaments. The gang all sang carols while enjoying hot chocolate. We made pigs in a blanket a delicious treat and had the gift exchange.
We also tried a new game pass the parcel which is an English tradition. You wrap a gift several times putting surprises in each layer. The participants pass the parcel until the music stops. Whoever has the gift unwraps one layer until you get to the mystery gift. This may become one of Camp Fire Fly’s new traditions.
We laughed, played games and had fun with all of our friends. Memories that will last until we get together again. Wishing you all the happiest and healthiest of holidays and New Year!!!!!! See you in the Spring.
Share with friends that might enjoy joining us for the fun. For more information on upcoming camps or retreats, visit our website: https://sbawp.org/firefly-camps-retreats/ or contact me, Sue Garver, at 724-934-9600. look forward to seeing you soon!
8th Annual Girlfriends for Good Purse Bash
After holding the 7th Annual Girlfriends for Good Purse Bash virtually, we were thrilled to see you all at the 8th Annual Purse Bash on Saturday, November 13, 2021 at St. Ferdinand’s Odenski Hall. We raffled 28 purses, baskets, mystery bags, and wine.
We would like to thank Aviva Brick Oven for catering, our volunteers, vendors, and sponsors for making the day a great one!
With your support, we help to improve the lives of individuals with spina bifida and related disabilities in our community.
We look forward to seeing you all next year! Please check back to our website for the 2022 date!
Soup & Salad Fundraiser
We were so excited to be able to come together on Sunday, October 24, 2021 for our Soup & Salad Fundraiser … and we think you were too! This was the best year yet, raising over $2,000! Thank you to all of our volunteers, SBAWP staff, and everyone who made and donated soup and desserts! A special thank you to Gynni and Bob Gorman for all of you hard work!
We hope to see you in 2022! (The date to be determined AFTER the Pittsburgh Steelers schedule is announced so check out website at https://sbawp.org/events/soupandsalad/https://sbawp.org/events/soupandsalad/ in August 2022.)
Youth & Teen October Retreat
Adult November Retreat
Retreat season is back with a bang!!!!!!!
It was great to get back together and see all our friends.
The fall retreats were a mix of Halloween fun and fall crafts. We made stuffed pumpkins, decorated ceramic pumpkins, and painted fall trees to name a few. We learned about Gratitude and how when we look at the positive things in life, life becomes more positive.
Scary stories were told by the open campfire. Games were played like bingo and Jenga. Some of us dressed up for snack time. We munched all weekend long on yummy eyeball cookies, a Halloween trifle, and warm and cheesy crack dip. We certainly did not go hungry.
We always have so much fun.
For more information on upcoming camps or retreats, visit our website: https://sbawp.org/firefly-camps-retreats/ or contact me, Sue Garver, at 724-934-9600. We look forward to seeing you soon!
Other Fundraisers and Ways to Support SBAWP:
ONE HOPE Wine Fundraiser
We have partnered with Play2Wear in Cranberry Twp to provide an online apparel store for all of your SBAWP apparel needs.
A small portion of your sale will be donated back to SBAWP.
We have a select number of items on the site, but if there is something different that you are interested in, please email Robin (firstname.lastname@example.org) and we will try to get the item added to the store.
Here is the link to the online store: https://www.play2wear.com/sbawp
6th Annual Noll-Spratt Golf Scramble
Thank you to everyone who helped make the 6th Annual Noll-Spratt Golf Scramble a huge success! The event started in 2016 with Brandon Noll and Tanner Spratt who were back to play this year. Jordin Noll and Rebecca Spratt organized the event in 2019 and Rebecca volunteered this year. We are grateful for the continued support we receive from the Noll and Spratt Families.
Again, Mother Nature treated us to beautiful weather. The Beaver Valley Golf Club staff was a key part of making the day a success.
Thank you to our Board of Directors for your continued support of such a great event! Thank you to those who attended, volunteered, donated, and sponsored a tee sign! Tee sign sponsors included J.E. Balicki & Associates – Erie Insurance, Pad2Pad Logistics & Consulting LLC, The Yetsick Family, Beaver Valley Automall, and NexTier Bank.
We look forward to seeing you next year on Saturday, September 17, 2022!
33rd Annual John L. Moroney III Memorial Golf Classic
Thank you to the Boilermakers Local 154, Steamfitters Local 449, and Ironworkers Local 3 for your continued support!
Thank you to all of the sponsors for coming out to support the 33rd John L. Moroney III Memorial Golf Classic to support the Spina Bifida Association of Western PA’s FireFly Camps! While it was a little on the warm side, it was a beautiful day to be at the Hickory Heights Golf Club.
For more information regarding SBAWP’s FireFly Camps, please visit https://sbawp.org/firefly-camps-retreats/.
We look forward to coming together next year at Hickory Heights Golf Club on Monday, July 25, 2022.
Summer 2021 FireFly Camps
We “traveled” around the world with this year’s camp theme. Our campers “visited” different countries through food, crafts, song and dance. Each camper had an individual passport that was stamped once they “visited” a country.
Campers explored their heritage by researching their own nationality. Some found that they had several, as most of us do. we created a collage, “Be the Change YOU Want to See in the World,” with handprints that were decorated with the flags of our nationalities.
The campers participated in many outdoor activities, including swimming, zip lining, archery, BB gun shooting, and, new this year, axe throwing. We played basketball, cornhole, steal-the-flag, and parachute games. We also enjoyed a boat ride on the river and taking in the sights of Pittsburgh with Ranger Mike at the helm.
In the evening, we had a campfire with songs and s’mores. Jake, our co-leader, lead the group with his ukulele and guitar. We also enjoyed karaoke night, movie night, international night, and, of course, our closing dance and award night.
One of our traditions at camp is “Super Sloppy” and there is a reason for that name. The campers get to vote on which counselors they want to participate, then each camper has a chance to douse each counselor with a particular food item. This year each group had breakfast, lunch, or dinner. Well … you can imagine the fun that was had! Since this was my first year as the camp leader, I was lucky enough to be chosen. I still smell mustard and pickles to this day! Check our the pictures to get the full effect!!
Well, that is just a small taste of camp, but what can’t really be put into words is the joy felt between the campers and counselors alike. It’s the memories made with friends, something new they learned or found our about themselves that is the true magic of camp. Hopefully, you will join us and find out for yourselves!
For more information on upcoming camps or retreats, visit our website: https://sbawp.org/firefly-camps-retreats/ or contact me, Sue Garver, at 724-934-9600. We look forward to seeing you soon!
8th Annual Afternoon JamFest
We want to express our sincere appreciation for our sponsors and everyone who came out to the 8th Annual Afternoon JamFest. We switched things up a bit this year because of the pandemic and held our Afternoon JamFest in June. We had beautiful, warm weather and were lucky enough to be able to use the patio at Jergel’s this year.
Our Signature Sponsors were Fifth Third Bank, Federated Hermes, Fort Pitt Capital Group, and The Yetsick Family. Gold Sponsors were John & Norma Liebenguth, NexTier Bank, and Seubert & Associates. Silver Sponsors were JF Balicki & Associates, Inc. – Erie Insurance, and the Schutte Family. Bronze Sponsors were McGee Maruca & Associates PC, Blackburn’s, and Three Rivers Adaptive Sports.
Proceeds from the 8th Annual Afternoon JamFest benefit the programs at the Spina Bifida Association of Western PA. To learn more about SBAWP, please visit our website: https://sbawp.org/programs/
If you attended, we hope you had a great time. If you were unable to make it, we hope to see you at the 9th Annual Afternoon JamFest in 2022. Please keep an eye on our website for the official date!
4th Annual Shoot for SBAWP
Thank you to all of the participants and sponsors for making the 4th Annual Shoot for SBAWP a success on Sunday, May 23, 2021 at Seven Springs! The weather was perfect for shooting again this year. If you have never been to Seven Springs, consider visiting the Laurel Highlands.
Our sponsors were Westmoreland Electric Services (Dinner), Tudi Mechancial (Beverage), Shelly Drilling (Station), The Schutte Family (Station), and our ammo sponsors: JE Balicki & Associates, The Luttner Costa Leonard Group – Merrill Lynch, Millennium Industrial Services, Paccar Financial, Joe McCormick, Nick Tripodes, and Tim Yetsick.
Proceeds from the Shoot for SBAWP benefits the programs at the Spina Bifida Association of Western PA. To learn more about SBAWP, please visit our website: https://sbawp.org/programs/
If you are interested in sponsoring or participating in the 5th Annual Shoot for SBAWP in 2022, please contact Robin Wingard at email@example.com.
Spring 2021 FireFly Weekend Retreats
We moved forward this spring with our FireFly Weekend Retreats. While keeping all of the COVID protocols in place, we were able to stay safe and have fun! Yes! Actual fun with our friends! It had been too long.
The March Retreats started off the season with great weather. We were able to get outside and enjoy yard games such as cornhole. It also gave us an opportunity to visit with Beau and Yogi, the camp horses. I thing that was everyone’s favorite.
We had a St. Patrick’s Day celebration with a scavenger hunt, rainbow cupcakes and, of course, shamrock shakes. We learned about science by making rain-in-a-jar and the art of airplane making … topping it off with an paper airplane race.
For our April and May Retreats, we concentrated on our Mom’s. We made clay dishes bedazzled with gems and flowers. This, along with handmade pop-up cards and painted pots with flowers, made the moms smile at the Youth and Teen Mother’s Day Brunch. The girls had a visit from local nursing school students to get their nails painted for the special day.
There is always so much going on at weekend retreats, I cannot possibly go into it all. Crafts, cooking, and games … just to name a few. you will just have to join us and find out for yourself. Take a look at some of the photos from the recent Spring Retreats to see the fun we had.
For more information on upcoming retreats, check out our website: https://sbawp.org/firefly-camps-retreats/ or contact me, Sue Garver, at 724-934-9600. Hope to see you soon!
Welcome to our first blog post!
While you are here, we hope that check out our new website. One our website you will be able to see all of our fundraising events as well as our FireFly Camps and Retreats schedule. As we host events (fundraisers or camps and retreats), we will share photos here.
Our latest edition of our newsletter, Kaleidoscope, is out now. If you would like to take a look at the digital copy, click here: https://sbawp.org/newsletters/ You will also find all of our past newsletters here.
We are excited to kick off our fundraising season with the Highmark Walk. Due to COVID, it will be virtual again this year. Please click this link: https://sbawp.org/events/highmark-walk/ to sign up for the walk before July 15, 2021.