Living Beyond Limits - What's Happening Now

Adult Spina Bifida Clinic Newsletters

December Retreats

It’s hard to believe the holidays are upon us but we certainly enjoyed the holiday spirit at the December retreats.


Youth and teen started the season right singing carols by the tree.  We even made up our own version of the twelve days of Christmas.  That was hilarious.


Fine arts miracles told us all stories about different holiday traditions while we all shared a few of our own.


We made tree ornaments and snowman with chalk that we can share with our families.  We also made yummy snacks and hot chocolate with candy canes that we enjoyed after our fun gift exchange. 


The Adults later shared in the fun by making gnomes and holiday glitter ornaments.  The gang all sang carols while enjoying hot chocolate. We made pigs in a blanket a delicious treat and had the gift exchange.


We also tried a new game pass the parcel which is an English tradition.  You wrap a gift several times putting surprises in each layer.  The participants pass the parcel until the music stops.  Whoever has the gift unwraps one layer until you get to the mystery gift.  This may become one of Camp Fire Fly’s new traditions.


We laughed, played games and had fun with all of our friends.  Memories that will last until we get together again. Wishing you all the happiest and healthiest of holidays and New Year!!!!!!  See you in the Spring.


Share with friends that might enjoy joining us for the fun.  For more information on upcoming camps or retreats, visit our website: or contact me, Sue Garver, at 724-934-9600.  look forward to seeing you soon!

Youth and Teen - December 3-5
Adult- December 10-12

8th Annual Girlfriends for Good Purse Bash

After holding the 7th Annual Girlfriends for Good Purse Bash virtually, we were thrilled to see you all at the 8th Annual Purse Bash on Saturday, November 13, 2021 at St. Ferdinand’s Odenski Hall. We raffled 28 purses, baskets, mystery bags, and wine.  

We would like to thank Aviva Brick Oven for catering, our volunteers, vendors, and sponsors for making the day a great one!

With your support, we help to improve the lives of individuals with spina bifida and related disabilities in our community.

We look forward to seeing you all next year!  Please check back to our website for the 2022 date!

Silver Sponsor
Beverage Sponsor
Reverse Raffle Sponsor

Soup & Salad Fundraiser

We were so excited to be able to come together on Sunday, October 24, 2021 for our Soup & Salad Fundraiser … and we think you were too!  This was the best year yet, raising over $2,000!  Thank you to all of our volunteers, SBAWP staff, and everyone who made and donated soup and desserts!  A special thank you to Gynni and Bob Gorman for all of you hard work!

We hope to see you in 2022!  (The date to be determined AFTER the Pittsburgh Steelers schedule is announced so check out website at in August 2022.)

Youth & Teen October Retreat
Adult November Retreat

Retreat season is back with a bang!!!!!!!   

It was great to get back together and see all our friends.

The fall retreats were a mix of Halloween fun and fall crafts. We made stuffed pumpkins, decorated ceramic pumpkins, and painted fall trees to name a few.  We learned about Gratitude and how when we look at the positive things in life, life becomes more positive.

Scary stories were told by the open campfire.  Games were played like bingo and Jenga.  Some of us dressed up for snack time.  We munched all weekend long on yummy eyeball cookies, a Halloween trifle, and warm and cheesy crack dip.  We certainly did not go hungry.

We always have so much fun.  

For more information on upcoming camps or retreats, visit our website: or contact me, Sue Garver, at 724-934-9600.  We look forward to seeing you soon!

Other Fundraisers and Ways to Support SBAWP:

ONE HOPE Wine Fundraiser

Please help us raise money by purchasing wine on the link below and also you can send wine to the SBAWP address for the Purse Bash!!

Here is the link to order:


Apparel Sale

We have partnered with Play2Wear in Cranberry Twp to provide an online apparel store for all of your SBAWP apparel needs.  

A small portion of your sale will be donated back to SBAWP.

We have a select number of items on the site, but if there is something different that you are interested in, please email Robin ( and we will try to get the item added to the store.

Here is the link to the online store:


6th Annual Noll-Spratt Golf Scramble

Thank you to everyone who helped make the 6th Annual Noll-Spratt Golf Scramble a huge success!  The event started in 2016 with Brandon Noll and Tanner Spratt who were back to play this year.  Jordin Noll and Rebecca Spratt organized the event in 2019 and Rebecca volunteered this year.  We are grateful for the continued support we receive from the Noll and Spratt Families.

Again, Mother Nature treated us to beautiful weather.  The Beaver Valley Golf Club staff was a key part of making the day a success.  

Thank you to our Board of Directors for your continued support of such a great event!  Thank you to those who attended, volunteered, donated, and sponsored a tee sign!  Tee sign sponsors included J.E. Balicki & Associates – Erie Insurance, Pad2Pad Logistics & Consulting LLC, The Yetsick Family, Beaver Valley Automall, and NexTier Bank.   

We look forward to seeing you next year on Saturday, September 17, 2022!

33rd Annual John L. Moroney III Memorial Golf Classic

Thank you to the Boilermakers Local 154, Steamfitters Local 449, and Ironworkers Local 3 for your continued support! 

Thank you to all of the sponsors for coming out to support the 33rd John L. Moroney III Memorial Golf Classic to support the Spina Bifida Association of Western PA’s FireFly Camps! While it was a little on the warm side, it was a beautiful day to be at the Hickory Heights Golf Club.   

For more information regarding SBAWP’s FireFly Camps, please visit

We look forward to coming together next year at Hickory Heights Golf Club on Monday, July 25, 2022.

Summer 2021 FireFly Camps

We “traveled” around the world with this year’s camp theme.  Our campers “visited” different countries through food, crafts, song and dance.  Each camper had an individual passport that was stamped once they “visited” a country.

Campers explored their heritage by researching their own nationality.  Some found that they had several, as most of us do.  we created a collage, “Be the Change YOU Want to See in the World,” with handprints that were decorated with the flags of our nationalities.

The campers participated in many outdoor activities, including swimming, zip lining, archery, BB gun shooting, and, new this year, axe throwing.  We played basketball, cornhole, steal-the-flag, and parachute games.  We also enjoyed a boat ride on the river and taking in the sights of Pittsburgh with Ranger Mike at the helm.

In the evening, we had a campfire with songs and s’mores.  Jake, our co-leader, lead the group with his ukulele and guitar.  We also enjoyed karaoke night, movie night, international night, and, of course, our closing dance and award night.

One of our traditions at camp is “Super Sloppy” and there is a reason for that name.  The campers get to vote on which counselors they want to participate, then each camper has a chance to douse each counselor with a particular food item.  This year each group had breakfast, lunch, or dinner.  Well … you can imagine the fun that was had!  Since this was my first year as the camp leader, I was lucky enough to be chosen.  I still smell mustard and pickles to this day!  Check our the pictures to get the full effect!!

Well, that is just a small taste of camp, but what can’t really be put into words is the joy felt between the campers and counselors alike.  It’s the memories made with friends, something new they learned or found our about themselves that is the true magic of camp.  Hopefully, you will join us and find out for yourselves!

For more information on upcoming camps or retreats, visit our website: or contact me, Sue Garver, at 724-934-9600.  We look forward to seeing you soon!


2021 Summer FireFly Camp - Adults

2021 Summer FireFly Camp - Youth and Teens

8th Annual Afternoon JamFest

We want to express our sincere appreciation for our sponsors and everyone who came out to the 8th Annual Afternoon JamFest.  We switched things up a bit this year because of the pandemic and held our Afternoon JamFest in June.  We had beautiful, warm weather and were lucky enough to be able to use the patio at Jergel’s this year.

Our Signature Sponsors were Fifth Third Bank, Federated Hermes, Fort Pitt Capital Group, and The Yetsick Family.  Gold Sponsors were John & Norma Liebenguth, NexTier Bank, and Seubert & Associates.  Silver Sponsors were JF Balicki & Associates, Inc. – Erie Insurance, and the Schutte Family.  Bronze Sponsors were McGee Maruca & Associates PC, Blackburn’s, and Three Rivers Adaptive Sports.

Proceeds from the 8th Annual Afternoon JamFest benefit the programs at the Spina Bifida Association of Western PA.  To learn more about SBAWP, please visit our website: 

If you attended, we hope you had a great time.  If you were unable to make it, we hope to see you at the 9th Annual Afternoon JamFest in 2022.  Please keep an eye on our website for the official date!

4th Annual Shoot for SBAWP

Thank you to all of the participants and sponsors for making the 4th Annual Shoot for SBAWP a success on Sunday, May 23, 2021 at Seven Springs!  The weather was  perfect for shooting again this year.  If you have never been to Seven Springs, consider visiting the Laurel Highlands.

Our sponsors were Westmoreland Electric Services (Dinner), Tudi Mechancial (Beverage), Shelly Drilling (Station), The Schutte Family (Station), and our ammo sponsors: JE Balicki & Associates, The Luttner Costa Leonard Group – Merrill Lynch, Millennium Industrial Services, Paccar Financial, Joe McCormick, Nick Tripodes, and Tim Yetsick.

Proceeds from the Shoot for SBAWP benefits the programs at the Spina Bifida Association of Western PA.  To learn more about SBAWP, please visit our website: 

If you are interested in sponsoring or participating in the 5th Annual Shoot for SBAWP in 2022, please contact Robin Wingard at


Spring 2021 FireFly Weekend Retreats

We moved forward this spring with our FireFly Weekend Retreats.  While keeping all of the COVID protocols in place, we were able to stay safe and have fun!  Yes!  Actual fun with our friends!  It had been too long.

The March Retreats started off the season with great weather.  We were able to get outside and enjoy yard games such as cornhole.  It also gave us an opportunity to visit with Beau and Yogi, the camp horses.  I thing that was everyone’s favorite.

We had a St. Patrick’s Day celebration with a scavenger hunt, rainbow cupcakes and, of course, shamrock shakes.  We learned about science by making rain-in-a-jar and the art of airplane making … topping it off with an paper airplane race.

For our April and May Retreats, we concentrated on our Mom’s.  We made clay dishes bedazzled with gems and flowers.  This, along with handmade pop-up cards and painted pots with flowers, made the moms smile at the Youth and Teen Mother’s Day Brunch.  The girls had a visit from local nursing school students to get their nails painted for the special day.

There is always so much going on at weekend retreats, I cannot possibly go into it all.  Crafts, cooking, and games … just to name a few.  you will just have to join us and find out for yourself.  Take a look at some of the photos from the recent Spring Retreats to see the fun we had.

For more information on upcoming retreats, check out our website: or contact me, Sue Garver, at 724-934-9600.  Hope to see you soon!

2021 Spring Youth & Teen Retreats

2021 Spring Adult Retreats

Welcome to our first blog post!

While you are here, we hope that check out our new website.  One our website you will be able to see all of our fundraising events as well as our FireFly Camps and Retreats schedule.  As we host events (fundraisers or camps and retreats), we will share photos here.

Our latest edition of our newsletter, Kaleidoscope, is out now.  If you would like to take a look at the digital copy, click here:  You will also find all of our past newsletters here.

We are excited to kick off our fundraising season with the Highmark Walk.  Due to COVID, it will be virtual again this year.  Please click this link:  to sign up for the walk before July 15, 2021.