Welcome to the Spina Bifida Association of Western Pennsylvania
SBAWP was originally formed in 1969 as a parent support group, and now offers a variety of programs and services including FireFly Camps and Retreats, the Gatehouse Pre-vocational and Life Skills Program, and Adult Community and Support Services. Through its programs and services that span a lifetime, the SBAWP gives individuals the resources, self-confidence, and practical skills to lead full and active lives and become contributing members of the community.
SBAWP’s corporate office is located in Wexford, PA and employs a part-time and full-time staff of trained professionals as well as administrative and support personnel. SBAWP is governed by a board of directors comprised of members of the community, parents of children and adults with spina bifida, and business and medical professionals. Programming and operating costs are funded by individual donations as well as federal, state, corporate and private grants.
Fall Weekend Retreats:
Youth and Teen Fall Retreats
Adult Fall Retreats
Upcoming Fundraising Events!
3rd Annual Shoot for SBAWP
Join us for our 3rd Annual Shoot for SBAWP at Seven Springs!
Wednesday, September 9, 2020 – Flight begins at 12 noon
Seven Springs COVID Cleaning and Disinfecting Plan can be found HERE.
Registration and sponsorship – CLICK HERE
Save the Date!
Noll-Spratt Golf Scramble
Saturday, September 26, 2020
Girlfriends for Good Purse Bash
Saturday, November 14, 2020
Watch for more information regarding these events!
Thank you for making the 2019 Shoot for SBAWP a huge success!
Recent Event
Girlfriends for Good Purse Bash
Recent Event - March 3, 2019 - 6th Annual Afternoon JamFest at Jergels!
2019 Marks the 50th Anniversary of the Spina Bifida Association. Since our first meeting in 1969, we have been working hard to pave a path for a brighter, stronger future by building strong kids, strong families and a strong community for individuals with spina bifida and their families. And it was time to CELEBRATE!
All proceeds from the event benefitted SBAWP and help to operate local programs, which support the individuals we serve find a place to belong, to renew their enthusiasm, build character, and overcome obstacles on their journey to become thoughtful, active, and successful members of our community.
Recent Event
Noll-Spratt Golf Scramble Inspiration
Jordin and Brandon’s cousin, Abby McCormick, has spina bifida and they have witnessed the impact the camps sponsored by the Spina Bifida Association of Western PA have had on her life. Abby has talked for years about her love for the Spina Bifida Association camps and the great friends she has made there.
Rebecca and Tanner’s extended family –his mother’s friend whose son, Nick, has spina bifida – was the driver of his interest in supporting the Spina Bifida Association. For Rebecca, the inspiration came from her admiration of the sled hockey athletes with spina bifida. In Rebecca’s words “ I admire how Nick and Abby can play sled hockey like they do. The fact that they can perform at such a competitive level while dealing with a condition so life changing is beyond amazing.”
Brandon and Tanner chose to organize the 2016 golf outing for the benefit of the Spina Bifida Association to bring awareness about spina bifida and the Association’s purpose. Now, Jordin and Rebecca could not be more grateful. to carry on their commitment to community service. The girls will strive to have an even more successful event than their brothers.
We thank you in advance for joining us in celebrating those who face the challenges that come with having spina bifida. We appreciate any support you can provide and hope to see you in June!
The Board of Directors of the Spina Bifida Association of Western Pennsylvania
Programs & Services
Frequently Asked Questions
- For more detailed information on Spina Bifida, please visit the Education section of our site.